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Blog in English 😉

I write simply, straight from my heart and without holding back about my experience of the cancer disease and my thoughts on various topics that appeared in my mind during the cancer and continue to do so.

I will try to post here regularly every Tuesday or Wednesday.

Chapter 1 - The beginning

It was June 1st, 2021. I was sitting in a dentist’s chair in the Oral and Maxillofacial Surgery Department when I heard the words that changed everything. *”Mr. Mryka, you have cancer.”* That sentence froze me in an instant. But that wasn’t all. The next sentence was even harder to hear: *”The tumor is malignant, and we need to act quickly. Unfortunately, there’s nothing more we can do for you here, so we’re referring you to the Oncology Institute. They’ll take over your treatment.”* Wait… what? How could I possibly have cancer? I was only 23 years old. How could this be happening to me? To be honest, I already knew something was wrong. I had noticed a strange lesion on the roof of my mouth, and after the biopsy I knew it was some kind of tumor. But a malignant one? Cancer? I never imagined that. To make matters worse, the location of the tumor wasn’t exactly reassuring – although, let’s face it, there probably isn’t a “good” place to have cancer. The tumor had developed in my hard palate, the upper part of my mouth. A tumor in the head and neck region is never good news, and unfortunately that wasn’t working in my favor either.
After what felt like a death sentence had been announced, the medical staff immediately got to work. They issued me a DILO card – the Polish fast-track oncology pathway – which is supposed to speed up access to specialist consultations and diagnostic tests. They explained which tests I needed, where to have them done, what the next steps would be, and scheduled a multidisciplinary medical board meeting that would decide how – or even whether – I could be treated. Everything happened at once. I had only a few days to complete all the examinations: a chest X-ray, CT scans of my abdomen, head and neck, an MRI of my head and neck, blood tests, urine tests… the full package. Looking back, I don’t even know what I was thinking. Maybe I wasn’t thinking at all. Those words – *”you have cancer”* – just kept echoing through my mind. At some point—and it’s probably better to realize it sooner rather than later – you understand that all those tests are not just there to get a better picture of the tumor. Of course that’s part of it, but their main purpose is to look for metastases. And if they find too many, treatment may no longer be possible – or worthwhile. In that case, the only option left might be palliative care. That realization is terrifying. Suddenly you understand that your life depends on the results of a series of scans and on decisions made by people you’ve only just met. And where am *I* in all of this? It’s *MY* life. How could I lose control over something so fundamental? Whose fault was it? Cancer supposedly doesn’t choose its victims. Why did it choose me? In moments like that, finding someone or something to blame isn’t easy. But another question quickly follows: Do I even need someone to blame? Would it change anything? Those thoughts kept racing through my head as I sat in the hospital waiting for all the appointments to be scheduled. Looking back, I don’t think I noticed the people around me, the hospital corridors, or even the world outside. For a moment, my entire world collapsed. How are you supposed to react to news that sounds like a death sentence? When you think about cancer, you think about suffering. People lose weight. Their hair falls out. They’re in pain. Some of them die. Was that going to be my future too?
Eventually I received all the paperwork and was allowed to leave the hospital. I got into my car and called my mom. That’s one of the hardest phone calls anyone can ever make. *”Mom… I have cancer. It’s malignant… We’ll talk when I get home.”* I didn’t make any more calls. I just needed to get home. I wasn’t in any condition to talk to anyone. By then, I wasn’t asking as many questions anymore. I was angry. Angry at life. This wasn’t how things were supposed to be. I was young, full of energy, with dreams, ambitions, and plans for the future. And none of that mattered. Disease doesn’t care. It simply doesn’t. That evening I had some time to think. And I made a decision. I decided that I would keep living exactly as I had before. I would treat this disease the same way it treated me. I would stay true to myself. No matter what lay ahead, I would keep moving forward. This disease would not stop me.

I wasn’t going to give it that satisfaction.

Chapter 2 - First troubles

I don’t want to bore you with every detail of my story, because at this point it becomes quite complicated. But I do want you to have a general idea of how everything unfolded. About six weeks passed between my diagnosis and my admission to the hospital. During that time, I underwent almost every diagnostic test imaginable. As planned, I was also referred to the Oncology Institute in Gliwice. There was a bit of luck involved in that as well. A nun who was a family friend happened to have an appointment there. A few days earlier, my mother had told her about my diagnosis. During her visit, she mentioned my case to the doctor who was examining her. As soon as he heard that I was only twenty-three years old, he didn’t hesitate. *”Tell him to come here next Tuesday.”* Every Tuesday, the team of surgeons met at the outpatient clinic. That’s why I was asked to come that day. Thanks to that conversation, I was able to bypass a great deal of paperwork and was seen immediately by the very doctors who would eventually operate on me. It wouldn’t be the last time my age played an important role in this story. The surgeons saw me almost immediately. I sat down, and within moments three doctors surrounded me and began assessing my case. They carefully reviewed every scan and test result and, of course, examined the tumor in my mouth. Their conclusion was unanimous. There was no time to wait. I needed surgery. They called in two more surgeons, who examined me as well. Together they decided that the operation should take place within three weeks. In the end, the surgery was scheduled four weeks after that appointment, which was still remarkably fast. During those four weeks, I visited the surgical team every week to discuss my condition and monitor the tumor. I also met with anesthesiologists, an internist, and underwent additional examinations, including an ultrasound, more CT scans, and X-rays. Then the surgeons explained what the operation would involve. *”You need to be prepared for a procedure lasting between six and eight hours. We’ll have to remove a significant portion of your hard palate. It will be a deep resection – we need to remove everything down to the sinuses. We’ll reconstruct the resulting cavity using tissue taken from your leg.* *We’ll rebuild your palate as well as we possibly can, but there will be consequences. Your voice will change, and there’s a chance you’ll have difficulty eating because food and liquids may pass into your nasal cavity.* *We’ll most likely have to remove most of the teeth on the right side of your upper jaw—probably five or six of them. We’ll do our best to reconstruct that area using bone from your leg, but how much we can rebuild depends entirely on how far the tumor has spread.* *As a result, the shape and contour of your face may change.* *You’ll probably stay in the hospital for eight to ten days. After surgery, you’ll spend at least one day in the ICU (Intensive Care Unit), and you may need a tracheostomy. You’ll also be fed through a stomach tube for at least seven days.”* Another doctor, this time from the reconstructive surgery team, added something I have never forgotten. *”You need to understand that what we’re about to do represents the very best modern medicine can offer. This is the absolute maximum we can do for you. We can’t guarantee anything.”* Those weren’t words anyone could simply accept without fear. I began imagining what I might look like after the surgery – assuming of course I survived it. And I didn’t like those images at all. What do you mean I might lose my teeth? What does it mean that my voice will change? That speaking and eating could become difficult? Was I really supposed to live the next forty years like that? Surely there had to be some mistake. And on top of everything else, I might end up with a breathing tube in my neck? The price was beginning to feel incredibly high. But then another thought crossed my mind. This was the price of staying alive. How much is my life worth? The only problem was that I didn’t have a choice. I had to pay that price. Because I wasn’t going to get another life. At moments like that, fear comes naturally. You simply don’t know what lies ahead, and everyone is afraid of the unknown. But you can’t allow fear to take control. The moment fear becomes stronger than you is a terrible place to be. Remaining trapped in that state slowly destroys a person from the inside.
This is also the moment when I’d like to mention the people who helped me overcome that fear. Of course, my family was there for me. But it was an incredibly difficult time for them as well, and I’m sure they were every bit as frightened as I was. Then there were my friends. Even today I remember some of the messages they sent me. *”I don’t know how I can help, but if there’s anything at all I can do, I’m here for you.”* *”I’ve arranged a Holy Mass to be offered for you. We’ll all be praying for you on Saturday.”* *”Don’t give up. We’re praying for you.”* *”Always stay positive. And if you ever lose hope, let me know. I’ll remind you that you can get through this.”* *”You’re in my thoughts, and I have no doubt that you’ll overcome this.”* Those may seem like ordinary messages. Nothing extraordinary. But they meant far more than the words themselves. They reminded me that I wasn’t facing all of this alone.
I am a Catholic, and one of the most important moments during that time was receiving the Anointing of the Sick. Praying wasn’t easy. It was difficult even to focus. I never blamed God for what had happened to me, but I also couldn’t simply trust that everything would somehow be all right—that everything already was all right—and that I would make it through. I had never turned away from Him. I had always tried to stay close to Him, and I believed He remained close to me. But everything had happened so suddenly. It was simply too much to carry all at once. I needed time to make sense of it all. Although I continued to pray faithfully and believed that God would help me, it was also one of the most spiritually demanding periods of my life.

But that’s a story for another time.

Chapter 3 - Before the surgery

At the beginning of July 2021, there was only one thing left to do – prepare for surgery. By then, I knew almost everything there was to know about what lay ahead, and the doctors knew just about everything there was to know about me. I had gone through lengthy pre-operative consultations with the surgeons, anesthesiologists, and an internist. Every test had already been completed. The doctors reviewed my blood work and all of my imaging scans. Thankfully, everything came back normal. Everything except the tumor on the palate in my mouth. This is a moment for a small anecdote. After seeing all the specialists, I had one final appointment with the surgical team before being admitted to the hospital. I was seen by one of the surgeons who had been involved in my case from the beginning – a relatively young doctor, probably in her early thirties. Looking back, I was actually very fortunate. Many of the specialists who treated me were young, around thirty to thirty-five years old. Our conversation went something like this. *”So, have you been everywhere you needed to go?”* she asked. *”Yes. All the tests are done, and here are the reports from all the doctors,”* I replied, handing her a small stack of papers. *”And what did they say? Everything looks good? We’re cleared for surgery?”* *”Everything is fine. There are no contraindications for the operation.”* *”Well, of course everything is fine – you’re young, you’re healthy…”* She suddenly paused and looked at me with a slightly embarrassed expression. It was obvious she had just realized that calling me “healthy” wasn’t exactly accurate. *”…apart from the reason you came to see us, of course.”* She smiled at me uncertainly. I smiled back and said, *”Exactly! Other than that, I feel perfectly healthy myself.”* She laughed. So did I. Oddly enough, that’s one of my favorite memories from the weeks before the operation. It’s also a reminder that doctors can be incredibly human – kind, compassionate, and genuinely caring. Looking back, I’m deeply grateful that so many of the people I met along the way were exactly like that.
Eventually, the day came when I was supposed to be admitted to the surgical ward. I arrived at the hospital early in the morning. I had already gone through almost the entire admission process when the doctor received a message saying that I couldn’t be admitted after all. The reason? There wasn’t enough blood. My blood type is A negative, which is relatively rare. Unfortunately, the hospital didn’t have enough of it available, and they couldn’t obtain more quickly from nearby blood banks. Their standard practice was to operate the day after admission, and there simply wasn’t enough time to secure the blood that might be needed during surgery. As a result, my admission was postponed by a week. That gave me one more week to think about everything that was about to happen. Honestly, it was probably better not to think. Every possible scenario my imagination came up with only led to fear. It was much better to spend that time with my family. The doctors had told me I would probably be in the hospital for around ten days, so I was grateful for every extra moment I could spend with the people closest to me.
The second attempt at admission went as planned. This time, my mom and my brother came with me. After changing into my hospital pajamas, I was given a few minutes to say goodbye. Looking back, I think that was one of the most emotional moments of the entire experience. I third to hold my tras back and I know they did the same. None of us had any idea what was about to happen. Then again, perhaps not knowing was, in some strange way, a blessing. A nurse took me to the ward. When I entered my room, there was already one patient there – my roommate, although only for one day. He was due to be discharged the following morning after spending three months in the hospital. He had undergone several operations and, as a result, had lost his tongue. He could barely speak. Even so, we managed to have a conversation, using pen and paper whenever words weren’t enough. He was almost seventy years old, and the thing he looked forward to most was finally going home to his wife and grandchildren. Remember, this was during the COVID-19 pandemic. Hospital visits were strictly prohibited, especially in departments like ours. Imagine not seeing your family for three months. Even phone calls were almost impossible. I’m truly grateful that I had the chance to spend even a short time talking with him.
Later that day, I still had to prepare for surgery. Since I was going to receive a tissue transplant, the surgeons planned to reconstruct the part of my palate they removed using tissue from my leg. That meant I had to shave both of my legs. The doctors also wanted to insert a central venous catheter before the operation. It’s not exactly a pleasant procedure. The needle is fairly large, and it has to be inserted deep beneath the skin, just below the right collarbone. It’s challenging for the patient. And it’s challenging for the doctor as well. Sometimes it simply doesn’t work. As you might have guessed, it didn’t work in my case. After placing the catheter, they routinely performed an X-ray to make sure everything was positioned correctly. It wasn’t. The catheter had to be removed, and the doctors decided they would place another central line in my groin once I was already on the operating table. After that, there was nothing left to do except eat my last meal and wait for the evening so I could try to get some sleep.
The next morning, I was woken up early. I washed, shaved, and put on the surgical gown the nurse had brought me. Then they gave me a sedative – in Poland it is a pill that calms your nerve, and I waited on my bed to be taken to the operating theatre. Was I nervous? Surprisingly, I don’t think I was. And I don’t believe it was because of the medication. The fear had come much earlier. By then, I had already faced it. I had learned to live with it. When the nurses arrived to take me to the operating room, my roommate looked at me and said, *”Good luck.”* Yes… The man who could barely speak managed to say those two words to me. Finally, I arrived at the operating suite. I had to wait there for a short while. A nurse came over to insert two IV lines. The first attempt failed. She looked at me apologetically and said, *”Something didn’t go right. I’ll have to try again.”* I laughed. *”Don’t worry. I seem to do everything twice these days.”* She laughed too. Then she wished me all the best and told me to keep looking at everything the way I was looking at it right then—with optimism. A few moments later, I was wheeled into the operating room. That was the first moment I truly felt uneasy. This was it. Something enormous was about to happen. Something that would change my life forever. What condition would I wake up in? What would happen afterward? Would I still be able to speak? Would I survive? The anesthesiologist placed a mask over my face and said, *”I’d like you to count backwards from ten.”*

*”Ten… nine… eight… seven… six… five…”*

Chapter 4 - That one f***ing night

*”Wiktor, can you hear me? Wiktor, it’s time to wake up. It’s all over now. Your palate has been reconstructed.”* I heard the words. But I couldn’t open my eyes. For a while, I had no idea what was happening around me. My mind simply wasn’t working. The words blended together into meaningless sounds, and opening my eyes—let alone looking around—felt almost impossible. Eventually, I managed to focus on the anesthesiologist standing to the left of my bed. *”The surgery is over. Everything went well. We’ve left a breathing tube through your nose as a precaution, just in case your airway swells.”* Almost instinctively, my right hand reached toward my neck. Even that tiny movement demanded more strength than my body had left. The moment my fingers touched my neck, every bit of energy drained away. *”You don’t have a tracheostomy,”* she reassured me. *”There was no need for one.”* Then she smiled gently. *”Now tell me your full name.”* *”Wiktor Mryka.”* The moment I heard my own voice, I froze. What… was that? That didn’t sound like me. It wasn’t my voice. On top of that, every word felt like an enormous effort. My lips, my mouth, my throat—nothing seemed to work anymore. Then the doctor said, *”Try swallowing your saliva.”* I couldn’t. Or rather, the swallowing reflex was still there—which, I imagine, was exactly what they wanted to check—but most of the saliva simply stayed in my mouth. *”You’ll have trouble swallowing for now. You have two tubes going through your throat—a feeding tube and the breathing tube. We’ll remove the breathing tube tomorrow. The feeding tube will stay for about a week.”* By then, her words were already beginning to fade. I only had enough energy for those few minutes. My eyes kept closing on their own. *”The operation lasted eight hours. Get some rest now. You’ll stay in the ICU until tomorrow morning, and then we’ll transfer you back to the ward.”* And I drifted away again. I woke up several times during the night. Once because I threw up. Once because a thunderstorm broke out. A tremendous clap of thunder pulled me back to reality for a brief moment. It must have been an incredible storm if I could hear it so clearly even from inside the intensive care unit. Another time because the monitors never stopped beeping, buzzing, and sounding alarms. One of the patients had some sort of emergency, and suddenly the entire room came alive with unfamiliar warning tones. Then, just before dawn, I woke up again when two nurses came to wash me. I can’t even describe how humiliating that felt. When you’re so weak that you can’t do absolutely anything for yourself… when two people have to wash you, lift you, and turn you over because you simply don’t have the strength… No matter how hard I tried to help them, I was barely able to contribute. That was also when I realized I was covered in saliva, blood, and sweat. It felt awful. I had never felt so helpless. Or so embarrassed. At that moment, I honestly thought nothing worse could possibly happen. I was soooo wrong. I should also say this. The nurses were incredibly kind, patient, compassionate. They never once made me feel uncomfortable or ashamed. That might not sound like much, but at the time it meant everything. For the next several hours, I simply lay there listening to the rhythmic beeping of the machines. There were, I think, eight patients in the ICU. Those sounds came from every direction. I know that during those hours I wasn’t really thinking. I couldn’t. My mind simply wasn’t capable of it. I stared blankly at the ceiling. Or at the wall. The only thing I prayed for was that no one in that room would go into cardiac arrest. That nothing would happen to any of the other patients. Eventually, one of the doctors came over and told me he was going to remove the breathing tube from my nose. *”You don’t need the extra oxygen anymore,”* he said. *”You’ll feel much more comfortable without it.”* What I didn’t know was that removing the tube simply meant pulling it out. I could feel every inch of it. It slid up through my throat… through my entire nasal passage… until it finally came out. The whole thing only lasted a few seconds. For me, it felt like forever. All I could think about was trying not to gag. Some time later, the nurses transferred me back to the surgical ward. Ever since the operation, I had remained in bed the entire time, so I was wheeled back exactly the same way. The very first thing I did after arriving in my room… was vomit. Everything that was still left inside me came back up. The doctors and nurses described it as bloody secretions and assured me it was a good thing that I had managed to clear them. They were right. At least medically. Unfortunately, I didn’t feel any better. Once everything had settled down and the doctor was satisfied that nothing else was going to happen, he told me to get some rest. *”You won’t be eating until tomorrow,”* he said. Eating. That word had a completely different meaning now. For the foreseeable future, every meal would be delivered directly into my stomach through a feeding tube. They adjusted my bed into a semi-upright position. Partly because it was more comfortable. Partly because I had spent more than twenty-four hours lying flat, and my body desperately needed a different position. Then everyone left. My previous roommate had already gone home. The next patient wasn’t expected until the following day. For the first time since the operation… I was completely alone. The only thing I managed to do before putting my phone away was send a short message to my parents. *”I’m back on the ward.* *I’m alive.”* It was sometime around three o’clock in the afternoon. Later that evening, one of the nurses came in with my medications and injections. There seemed to be countless of them every single day. Shots in my abdomen. Another in my arm. Medication through the central line. And two IV drips—one for pain relief and one with antibiotics. Those few minutes were the only human interaction I had that entire evening. Apart from that… I was alone. Just me. And my own thoughts. That was when the longest night of my life began. It didn’t take long to realize that I couldn’t lie down. Every time I tried, I could feel the feeding tube in my throat, while bloody discharge or mucus from my nose ran straight down into it. My sinuses were completely blocked, and although it wasn’t pleasant, it was much better when the blood and mucus drained out through my nose instead of flowing backward. I also began to *feel* my new palate. It bothered me constantly. A transplant is something completely foreign. Something your brain doesn’t yet recognize as part of your own body. Mine certainly didn’t. It quickly became clear that there wasn’t a comfortable position anywhere in that bed. Lying down was impossible. Sitting wasn’t much better. I tried to sleep. I really did. But for the first time since the operation, my mind was no longer clouded by medication. I could think again. And that turned out to be the worst part. I tried speaking out loud. Just a few words. My voice sounded awful. Every single word exhausted me. Blood dripped from my nose. Saliva kept running from my mouth. That was when it truly hit me. I was drooling. Because, damn it… I couldn’t swallow my own saliva.  **WHAT HAD THEY DONE TO ME?** I couldn’t open my mouth properly. I couldn’t swallow my own saliva. My voice sounded terrible. Every word was exhausting. There was a tube in my nose. A surgical drain in my leg. A urinary catheter. This was ridiculous. I was twenty-three years old. Twenty-three. At that age, I should have been traveling the world. Finishing university. Looking for my first real job. Earning money. Living life to the fullest. Instead… I was lying in a hospital bed, barely alive. Blood was dripping from my nose. Saliva from my mouth. I couldn’t sleep. My head hurt. My leg hurt. My back hurt. Even sitting had become painful. What kind of life was this? What was the point of suffering like this? What would any of this achieve? What would any of this bring me? What was my future supposed to look like? Because if this… if *this* was my future… I didn’t want it. At that moment, it felt as though I had already been excluded from normal life. How do you start a conversation with someone when you can barely speak? How do you walk up to a girl and compliment her when every single word has to be forced out, one syllable at a time? Was that it? Would my life now be limited to social isolation… and a handful of friends who, hopefully, wouldn’t walk away? I couldn’t live like that. Would I ever be able to do anything again? Would I ever run? Play football? Do sports? That night… I couldn’t see my future. I couldn’t see anything beyond that hospital room. None of it made any sense anymore. I wanted to believe it was all just a nightmare. A horrible dream that I would eventually wake up from. I had to. Because a life like this couldn’t possibly be real. Was I supposed to suffer for the rest of my life? How much more would I have to endure? How long would things stay this difficult? Tears streamed down my face. For as long as they could. Eventually… there weren’t any tears left. By morning, I was covered in saliva. My face was stained with tears. There was dried blood around my nose. Altogether, I think I slept for no more than forty-five minutes that entire night. I didn’t want morning to come. I wasn’t waiting for a new day. I already knew it wouldn’t change anything. It would only bring another day of pain. Another day of struggling. And for what? Then the door opened. A nurse walked into the room with a warm smile on her face.

*”Good morning! Time to wash up and start a brand-new day.”*


At the bottom you can find two pictures – one of me before the surgery and the second is the day after the surgery.

photo 2021 07 16 19 31 24 photo 2021 07 16 19 30 37